Agencies/Organizations

This list includes a selection of the resources that the Cochlear Implant Education Center has found useful when working with students and families in our demonstration schools. This does not represent a complete list of the many resources that may be available. The absence of a resource on this list does not indicate that we do not support it; it may never have come our way. We are always in the process of trying out new things.

Agencies/Organizations

Alexander Graham Bell Association

3417 Volta Place, NW
Washington, DC 20007
202-337-5220 (V/TTY)
E-mail: agbell2@aol.com
Web: http://www.agbell.org/

A brochure on cochlear implants can be obtained from this organization in addition to a wealth of other resources on deafness and oral education.

American Speech-Language-Hearing Association (ASHA)

10801 Rockville Pike
Rockville, MD 20852
800-638-8255 (V/TTY)
E-mail: actioncenter@asha.org
Web: http://www.asha.org

Information on cochlear implants from ASHA can be found directly at: http://www.asha.org/about/news/tipsheets/cochlear_quickfacts.htm
http://www.asha.org/NR/rdonlyres/215CC9B8-6831-494F-83ED-E02A6832A8A9/0/24402_1.pdf

National Association of the Deaf

814 Thayer Avenue
Silver Spring, MD 20910
301-587-1788
E-mail: nadinfo@nad.org
Web: http://www.nad.org/

The NAD position paper on cochlear implants can be downloaded from this site. This paper subscribes to the NAD's philosophy of the wellness model upon which "the physical and psychosocial integrity of deaf children and adults is based."  For a copy of the position paper see: http://www.nad.org/issues/technology/assistive-listening/cochlear-implants

National Institute on Deafness and Other Communication Disorders (NIDCD)

1 Communication Avenue
Bethesda, MD 20892
800-241-1044 (V)
800-241-1055 (TTY)
E-mail: nidcdinfor@nidcd.hih.gov
Web: http://www.nidcd.nih.gov/

A cochlear implant information packet can be obtained through this organization's Web site. Information can be directly downloaded on the topic of cochlear implants and many other topics specific to hearing loss. The cochlear implant fact sheet can be found at: http://www.nidcd.nih.gov/health/hearing/coch.htm

Network of Educators of Children with Cochlear Implants (NECCI)
http://www.northshorelij.com/body.cfm?ID=836

NECCI is an organization primarily composed of educators, audiologists, and speech- language pathologists. It publishes a newsletter several times a year. NECCI provides a curriculum workshop about cochlear implants for professionals that also includes a special parent component of the program.

Educational Audiology Association (EAA)

13153 N Dale Mabry Hwy, Suite 105
Tampa , Florida 33618
800-460-7322
Email: EAA@L-TGRAYE.COM
Web: http://www.edaud.org

The Educational Audiology Association is an international organization comprised of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings

Hands & Voices

http://www.handsandvoices.org

Hands & Voices is a nationwide, parent driven, non-profit organization that provides unbiased support to families with children who are deaf or hard of hearing. Support activities and information may include, outreach events, educational seminars, advocacy, lobbying efforts, parent to parent networking and a newsletter.

The Children's Hearing Institute (CHI)

http://www.childrenshearing.org

The Children's Hearing Institute (CHI) is a private, non-profit foundation that was established in 1983 by Simon C. Parisier, MD, a pioneer in hearing loss and cochlear implant research and surgery. The CHI web site is available in English and Spanish. It features information on cochlear implants and hearing loss, an In The News section, and an extensive Patient and Family Resource Guide highlighting organizations, web sites, educational resources, emotional/social development, support groups, insurance information, online articles, advocacy resources, recommended books/videos/CD's, online tools, annotated research articles, and online forums related to cochlear implants and hearing loss.

Cochlear Implant Awareness Foundation (CIAF)

CIA Foundation

The Cochlear Implant Awareness Foundation provides information, resources, support, and financial assistance to individuals who may be eligible for a cochlear implant. The financial assistance program is not intended to cover the medical procedure itself, but rather to assist families with costs that are not traditionally covered by insurance (i.e., hotel or other travel expenses, childcare, etc.) or expenses which exceed the limits of health care coverage. For more information visit the CIAF website.