Research Projects

Posted January, 2009: Unfortunately, we are currently unable to accept new participants into these research projects due to a lapse in funding. Please check back for further updates or contact the project director:

Dr. Kathleen Arnos: kathleen.arnos@gallaudet.edu

Phone: (202) 651-5258 Voice or TTY

The Alumni Project:
Deaf individuals who are Gallaudet alumni as well as current deaf Gallaudet students are eligible to participate in this study. This project is a collaborative effort between Gallaudet's Department of Biology and the Department of Human Genetics at the Medical College of Virginia designed to extend the 1898 study of deaf families by Professor E.A. Fay, Vice-President of Gallaudet University. Another goal is to identify and characterize rare genes that interact to cause deafness.

The Societal Impact Project:
The aim of this study is to assess the impact of genetic technology and the availability of genetic testing for deafness genes on the Deaf and hearing communities. Through this study we are collecting qualitative and quantitative data to further understand the perspectives of Deaf individuals and parents of deaf children with regard to genetic testing and technology. In particular, we are recruiting single deaf individuals between the ages of 21 and 35 to participate in this study.

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